This Article Full Text (PDF) References Alert me when this article is cited Alert me if a correction is posted Citation Map Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Add to Saved Citations Download to citation manager Request Permissions Request Reprints Add to My Marked Citations Citing Articles Citing Articles via Google Scholar Citing Articles via Scopus Google Scholar Articles by Ronen, G. M. Articles by Streiner, D. L. Search for Related Content PubMed PubMed Citation Articles by Ronen, G. M. Articles by Streiner, D. L. Social Bookmarking                         What's this?

Topical Review: Outcome Measures in Pediatric Neurology: Why Do We Need Them?

Department of Pediatrics, McMaster University Hamilton, ON, roneng{at}fhs.mcmaster.ca

Peter Rosenbaum, MD

Department of Pediatrics, McMaster University Hamilton, ON

David L. Streiner, PhD

Department of Psychiatry, University of Toronto Toronto, ON

Outcome measures should include the patient's values and preferences (from the patient's perspective) in addition to performance ratings and physiologic states. Outcome measures can assess relationships between services and interventions and their end results, can clarify which therapies are worth providing and which therapies need more evidence about their effectiveness, and can measure the burdens of different disorders and interventions. Researchers recently have shown the feasibility of creating and using outcome measures for children with neurodevelopmental disorders. Clinicians may wish to familiarize themselves with the concepts of outcome measures and health-related quality of life in order to understand the rationale, utility, properties, and various types of outcome measures in order to select the most appropriate instruments that will best serve their patient populations. Ongoing research efforts are currently using such measures in children with central nervous system tumors, with neural tube defects, and of extremely low birthweight; in childhood and adolescent epilepsy; and in adolescents with headaches. (J Child Neurol 2000;15:775-780).

Journal of Child Neurology, Vol. 15, No. 12, 775-780 (2000)
DOI: 10.1177/088307380001501201


CiteULike    Complore    Connotea    Del.icio.us    Digg    Reddit    Technorati    Twitter    What's this?