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Journal of Child Neurology, Vol. 22, No. 5 suppl, 61S-70S (2007)
DOI: 10.1177/0883073807303070
© 2007 SAGE Publications

The Personal and Financial Impact of Repetitive or Prolonged Seizures on the Patient and Family

Christine O'Dell, RN, MSN

Comprehensive Epilepsy Management Center, Montefiore Medical Center, Bronx, New York, codell{at}sprynet.com

James W. Wheless, MD

Department of Pediatric Neurology, University of Tennessee Health Science Center, Memphis, Tennessee

James Cloyd, PharmD

Department of Orphan Drug Development, Center for Orphan Drug Research, University of Minnesota, Minneapolis, Minnesota

Individuals with epilepsy consistently report diminished quality of life. The clinical characteristics of seizures and the unpredictable nature of seizure occurrences are some factors that affect quality of life. Prolonged or repetitive seizures can impose psychologic comorbidities, social issues, and lifestyle restrictions that can affect quality of life of patients and their caregivers and family members, who also bear the considerable indirect costs of seizures, including time away from work or school, and even loss of employment. The availability and use of an at-home medication to terminate prolonged or repetitive seizures or in seizure emergencies improves quality of life for patients and their families. Fewer visits to the emergency department are associated with a reduction in the financial burden to families and the health care system. This article discusses factors that contribute to the personal and financial impact of prolonged seizures on adult and pediatric patients, their families, and caregivers.

Key Words: financial impact • acute seizures • patient and family


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