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Journal of Child Neurology
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Review Article: The Management of Children With Spinal Dysraphism

Gregory S. Liptak, MD, MPH

Birth Defects Center, Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY

Jill W. Bloss, RPT

Birth Defects Center, Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY

Henra Briskin, CSW

Birth Defects Center, Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY

Jeanette E. Campbell, RN, MS

Birth Defects Center, Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY

Elizabeth B. Hebert, OTR

Birth Defects Center, Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY

Gail M. Revell, RN, MS

Birth Defects Center, Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY

Improvements in technology have dramatically increased the survival of children with spinal dysraphism. Because this complex condition affects multiple organ systems as well as the psychosocial functioning of the child and family, these children require care from a host of specialists in order to achieve optimum functioning. This article reviews the pathophysiology and discusses the current management of the medical and psychosocial effects of spinal dysraphism. It also briefly discusses strategies for intervention, long-term outcomes, and some controversies regarding care and screening. (J Child Neurol 1988;3:3-20).

Journal of Child Neurology, Vol. 3, No. 1, 3-20 (1988)
DOI: 10.1177/088307388800300102
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