This Article Full Text (PDF) Alert me when this article is cited Alert me if a correction is posted Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Add to Saved Citations Download to citation manager Request Permissions Request Reprints Add to My Marked Citations Citing Articles Citing Articles via HighWire Citing Articles via Google Scholar Citing Articles via Scopus Google Scholar Articles by Hunter, K. Search for Related Content PubMed PubMed Citation Articles by Hunter, K. Social Bookmarking                         What's this?

Role of the International Rett Syndrome Association

International Rett Syndrome Association, Fort Washington, MD

Since 1984, the International Rett Syndrome Association has brought together families of girls with Rett syndrome, disseminated information about the syndrome, and supported research efforts. Through its computerized records, the Association can match parents most able to provide support for one another, refer parents to physicians familiar with Rett syndrome, keep accurate statistical records of the disease, and connect researchers with subjects willing to participate in investigations. The Association helps families adjust emotionally and practically to living with a Rett syndrome patient and works toward long-term answers by promoting understanding and improved treatment for the condition. (J Child Neurol 1988;3(Suppl):S87-S88).

Journal of Child Neurology, Vol. 3, No. 1 suppl, S87-S88 (1988)
DOI: 10.1177/088307388800300117


CiteULike    Complore    Connotea    Del.icio.us    Digg    Reddit    Technorati    Twitter    What's this?

This article has been cited by other articles:

				H. W. Moser and R. H. Haas Introduction J Child Neurol, January 1, 1988; 3(1_suppl): S2 - S2. [PDF]